Parents' Perceptions of Communication Patterns and Effectiveness of Use of Augmentative and Alternative Communication Systems by Their Children With Angelman Syndrome Purpose The author describes communication patterns and outcomes of augmentative and alternative communication (AAC) intervention for individuals with Angelman syndrome. Method Parents self-administered a web-based survey using Qualtrics software. A series of rating scales and closed questions were used to gather information about individuals' current methods of communication, ... Research Article
Research Article  |   November 01, 2014
Parents' Perceptions of Communication Patterns and Effectiveness of Use of Augmentative and Alternative Communication Systems by Their Children With Angelman Syndrome
 
Author Affiliations & Notes
  • Stephen N. Calculator
    University of New Hampshire, Durham
  • Disclosure: The author has declared that no competing interests existed at the time of publication.
    Disclosure: The author has declared that no competing interests existed at the time of publication.×
  • Correspondence to Stephen N. Calculator: stephen.calculator@unh.edu
  • Editor: Krista Wilkinson
    Editor: Krista Wilkinson×
  • Associate Editor: Nancy Brady
    Associate Editor: Nancy Brady×
Article Information
Augmentative & Alternative Communication / Special Populations / Genetic & Congenital Disorders / School-Based Settings / Research Articles
Research Article   |   November 01, 2014
Parents' Perceptions of Communication Patterns and Effectiveness of Use of Augmentative and Alternative Communication Systems by Their Children With Angelman Syndrome
American Journal of Speech-Language Pathology, November 2014, Vol. 23, 562-573. doi:10.1044/2014_AJSLP-13-0140
History: Received December 2, 2013 , Revised January 28, 2014 , Accepted March 17, 2014
 
American Journal of Speech-Language Pathology, November 2014, Vol. 23, 562-573. doi:10.1044/2014_AJSLP-13-0140
History: Received December 2, 2013; Revised January 28, 2014; Accepted March 17, 2014
Web of Science® Times Cited: 2

Purpose The author describes communication patterns and outcomes of augmentative and alternative communication (AAC) intervention for individuals with Angelman syndrome.

Method Parents self-administered a web-based survey using Qualtrics software. A series of rating scales and closed questions were used to gather information about individuals' current methods of communication, including AAC devices they were using. Individuals' uses of their single most advanced AAC devices were further explored in terms of associated importance, usefulness, success, acceptance, and functional outcomes.

Results Nonsymbolic methods of communication proved to be very important to individuals, as did electronic AAC devices, although to a lesser extent. Individuals tended to have access to more than one electronic device concurrently. Although numerous devices were cited, mobile technologies, particularly iPads, were especially prevalent. This represented a significant change from a previous investigation. Overall, device use was perceived to be frequently important, accepted, successful, and useful in relation to 8 different factors, although ratings across a series of 19 functional outcomes varied. Differences were noted on several measures when individuals' ages and educational placements were considered.

Conclusion Results suggest a changing landscape in terms of types of devices used, particularly with respect to mobile technologies, and show clear evidence that device use is often, although not uniformly, associated with positive outcomes.

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